My life & my journey

I live in Tavannes with my mum, who has a very important place in my life and daily routine.

I love travelling, exploring the world and creating new memories with her.

Unfortunately, my dad has had little presence in my life for several years and does not really take part in supporting me on a daily basis. This situation is also part of my story.

Outside school and Powerchair Hockey, I enjoy going out with my friends, spending time with my family, listening to music, playing video games, going on holiday and discovering new things.

Even though Duchenne means I need a lot of help every day, I want to keep enjoying my youth, having new experiences and making my projects happen.

For me, my life is not defined solely by my disease or my wheelchair. I have my passions, my dreams, my goals and still so many things I want to experience.

My mum, Maryline Vorpe, is the most important person in my life.

For 17 years now, she has supported me every day. Because of my disease, I need help with a great many things in daily life, and she has devoted a very large part of her life to helping me, caring for me and making sure I can pursue my projects and passions.

She does not only support me in daily life. She also handles an enormous amount of administrative work related to my situation, my disability and organising my future.

We also share many good moments together. We particularly enjoy going on holiday, travelling and discovering the world. These moments are precious to me, and I love creating these memories with her.

Alongside everything she does for me, my mum works in real estate. Since 2026, she has been self-employed with her own company, La Gérance 360, in Tavannes.

I am also very proud of her and her journey. Before working in real estate, she was an accomplished equestrian and even belonged to the Swiss team. Today, I am just as proud to see her develop her own company and pursue her professional projects.

I am extremely grateful for everything she does for me. Without her, my life simply would not be the same. ❤️

My grandmother — Monique Vorpe

My grandmother, Monique Vorpe, is also there for me a lot. I am really lucky to have her in my life.

During my holidays, she sometimes comes with me to my Powerchair Hockey training sessions. She also does so many other things for me, and we enjoy lots of outings together: trips to Geneva or Lausanne, EHC Biel ice hockey matches and many other activities.

I thank her for everything she does for me, for being there and for all the moments we share.

My grandfather

My grandfather is always there for my mum and me whenever we need help. He treats us to incredible trips, often invites us out for meals and does lots of things with us.

For my 17th birthday on 1 July 2026, he made my dream of going to Miami come true. It was unforgettable.

I also thank him for everything he does for us and for all those wonderful memories.

Today, I attend a business school at Feusi in Bern. This education allows me to continue my studies while preparing for my professional future.

In the future, I would like to work in accounting and finance, with the goal of one day connecting my profession with another of my great passions: sport.

One of my projects would also be to one day become an ice hockey or football coach. I would like to discover the world of coaching and see where this passion might take me.

I completed part of my schooling at Rossfeld in Bern, an institution adapted for people with disabilities. Rossfeld has played an important role in my journey and allowed me to attend school in an environment adapted to my needs.

Today, I am no longer in the school part of Rossfeld. I stay in the adult unit for part of the week while studying in Bern.

There are many positive things about Rossfeld and I am grateful for what the institution has given me. But at 17, I also feel that something is missing: an environment truly designed for teenagers and young people my age.

I think it is a shame that there are not more institutions adapted to young adults. This would simply allow us to be surrounded more by people our own age.